Be Not Afraid
Benotafraid.net is an online outreach to parents who have received a poor or difficult prenatal diagnosis. The family stories, articles, and links within this site are presented as a resource for those who may have been asked to choose between terminating a pregnancy or continuing on despite the diagnosis. The benotafraid.net families faced the same decision and chose not to terminate. By sharing our experiences, we hope to offer encouragement to those who may be afraid to continue on.
http://www.benotafraid.net/default.asp
http://www.benotafraid.net/default.asp
Alexandras House Perinatal Hospice House and Infant Refuge
"Alexandra’s House is a community based, peer support perinatal hospice program that provides active management and hope for families pregnant with or who have a baby with lethal anomalies and who is expected to die near or shortly after birth. Part of our services include helping to bring meaning to the families’ suffering, birth planning, attending doctors visits, testing, photography sessions, hospital-based labor and delivery, coordination of memorial services and long-term bereavement care."
Please visit http://www.alexandrashouse.com/about-us/.
Please visit http://www.alexandrashouse.com/about-us/.
http://www.trisomyhelp.org/index.html
Trisomy Advocacy Group (TAG) is a non-profit, 501(c)(3) organization advocating for the Trisomy community by empowering families and the medical community to make informed decisions regarding the care of Trisomy children.
Workplace Giving Contributions
Donating to the Trisomy 18 Foundation through your workplace giving campaign makes it easy to help parents coping with a Trisomy 18 diagnosis for a much-wanted child. You can increase the impact of your gift by using your employer's matching gift program and encouraging co-workers to give.
Combined Federal Campaign (CFC) - Federal and military employees nationwide will be able to give to the Trisomy 18 Foundation through the annual CFC campaign, which runs from September 1 to December 15 each year. Check back in Sept 2009 to learn our CFC number.
State and local charitable campaigns coming soon!
United Way - You may designate all or part of your United Way gift to the Trisomy 18 Foundation in most areas of the country. Simply write the Trisomy 18 Foundation's full name and address on your designation form with our Federal I.D. number: 77-0600393.
Trisomy 18 Foundation, Inc.
4491 Cheshire Station Plaza
Suite 157
Dale City, VA 22193Thank you for your support of the Trisomy 18 Foundation through your workplace giving campaign!
Combined Federal Campaign (CFC) - Federal and military employees nationwide will be able to give to the Trisomy 18 Foundation through the annual CFC campaign, which runs from September 1 to December 15 each year. Check back in Sept 2009 to learn our CFC number.
State and local charitable campaigns coming soon!
United Way - You may designate all or part of your United Way gift to the Trisomy 18 Foundation in most areas of the country. Simply write the Trisomy 18 Foundation's full name and address on your designation form with our Federal I.D. number: 77-0600393.
Trisomy 18 Foundation, Inc.
4491 Cheshire Station Plaza
Suite 157
Dale City, VA 22193Thank you for your support of the Trisomy 18 Foundation through your workplace giving campaign!
Pregnancy and birth are miraculous journeys. This amazing time of life is full of mystery, anticipation, joy, hope, and wonder. Feeling the powerful energy of birth and new life, watching as a new family is born unto each other. These things humble and amaze. These are the things that we celebrate when a baby is born.
But there is another aspect of pregnancy and birth. There is an unexpected place in this journey where some families may find themselves. When a baby dies, a world is turned upside down. There is confusion, sadness, fear, and uncertainty that cannot be explained. There is sorrow where there should have been joy. During this time, it might be impossible for families to know what they might need in order to heal in the future.
This is the place where the Now I Lay Me Down to Sleep Foundation gently provides a helping hand and a healing heart. For families overcome by grief and pain, the idea of photographing their baby may not immediately occur to them. Offering gentle and beautiful photography services in a compassionate and sensitive manner is the heart of this organization. The soft, gentle heirloom photographs of these beautiful babies are an important part of the healing process. They allow families to honor and cherish their babies, and share the spirits of their lives. The NILMDTS mission statement is to introduce remembrance photography to parents suffering the loss of a baby with the gift of professional portraiture. We believe these images serve as an important step in the family's healing process by honoring their child's legacy.
The Now I Lay Me Down to Sleep Foundation (NILMDTS) administers a network of more than 7,000 volunteer photographers in the United States and 25 countries. At a family's request, a NILMDTS Affiliated Photographer will come to your hospital or hospice location and conduct a sensitive and private portrait session. The portraits are then professionally retouched and presented to the families on an archival DVD or CD that can be used to print portraits of their cherished baby.
Our entire network of affiliated photographers graciously donate their time and talents to our families and we are proud to be able to offer our services at no cost. Your Donations are greatly needed and greatly appreciated.
Please consider supporting the mission of NILMDTS
But there is another aspect of pregnancy and birth. There is an unexpected place in this journey where some families may find themselves. When a baby dies, a world is turned upside down. There is confusion, sadness, fear, and uncertainty that cannot be explained. There is sorrow where there should have been joy. During this time, it might be impossible for families to know what they might need in order to heal in the future.
This is the place where the Now I Lay Me Down to Sleep Foundation gently provides a helping hand and a healing heart. For families overcome by grief and pain, the idea of photographing their baby may not immediately occur to them. Offering gentle and beautiful photography services in a compassionate and sensitive manner is the heart of this organization. The soft, gentle heirloom photographs of these beautiful babies are an important part of the healing process. They allow families to honor and cherish their babies, and share the spirits of their lives. The NILMDTS mission statement is to introduce remembrance photography to parents suffering the loss of a baby with the gift of professional portraiture. We believe these images serve as an important step in the family's healing process by honoring their child's legacy.
The Now I Lay Me Down to Sleep Foundation (NILMDTS) administers a network of more than 7,000 volunteer photographers in the United States and 25 countries. At a family's request, a NILMDTS Affiliated Photographer will come to your hospital or hospice location and conduct a sensitive and private portrait session. The portraits are then professionally retouched and presented to the families on an archival DVD or CD that can be used to print portraits of their cherished baby.
Our entire network of affiliated photographers graciously donate their time and talents to our families and we are proud to be able to offer our services at no cost. Your Donations are greatly needed and greatly appreciated.
Please consider supporting the mission of NILMDTS
Trisomy Online is an email based support group that aims to provide information and support to those whose lives have been touched by a diagnosis of trisomy. On this page some of our families have shared their stories and precious photographs in the hope that it may help others who are faced with similar situations. We invite you to read these stories, to meet us and our children.
"Maybe if I share the path I walk then a little more of your pain will vanish. I want you to heal, whoever you are. I don't care what pain you've brought the world, I just want yours to subside. No matter what, your path is yours."
We hope that you will join our family, share your own story and let us be there to help you during good and the bad of the days ahead.
"When we honestly ask ourselves which person in our lives mean the most to us, we often find that it is those who, instead of giving advice, solutions, or cures, have chosen rather to share our pain and touch our wounds with a warm and tender hand. The friend who can be silent with us in a moment of despair or confusion, who can stay with us in an hour of grief and bereavement, who can tolerate not knowing, not curing, not healing and face with us the reality of our powerlessness, that is a friend who cares". ~ Henri Nouwen
http://www.trisomyonline.org/tlist.htm
"Maybe if I share the path I walk then a little more of your pain will vanish. I want you to heal, whoever you are. I don't care what pain you've brought the world, I just want yours to subside. No matter what, your path is yours."
We hope that you will join our family, share your own story and let us be there to help you during good and the bad of the days ahead.
"When we honestly ask ourselves which person in our lives mean the most to us, we often find that it is those who, instead of giving advice, solutions, or cures, have chosen rather to share our pain and touch our wounds with a warm and tender hand. The friend who can be silent with us in a moment of despair or confusion, who can stay with us in an hour of grief and bereavement, who can tolerate not knowing, not curing, not healing and face with us the reality of our powerlessness, that is a friend who cares". ~ Henri Nouwen
http://www.trisomyonline.org/tlist.htm
LivingWithTrisomy.org
Links to family web pages offering information & support to other families Living With Trisomy
http://www.livingwithtrisomy.org/index.htm
Links to family web pages offering information & support to other families Living With Trisomy
http://www.livingwithtrisomy.org/index.htm
Prenatal Partners for Life is a group of concerned parents (most of whom have or had a special needs child), medical professionals, legal professionals and clergy whose aim is to support, inform and encourage expectant or new parents.
We offer support by connecting parents facing an adverse diagnosis with other parents who have had the same diagnosis. We have many resources such as adoption agencies with clients waiting to adopt and love a special needs child should a parent feel they could not care for them.
We believe each child is a special gift from God.
We offer support by connecting parents facing an adverse diagnosis with other parents who have had the same diagnosis. We have many resources such as adoption agencies with clients waiting to adopt and love a special needs child should a parent feel they could not care for them.
We believe each child is a special gift from God.
Trisomy Oz Prenatal Support
http://www.trisomyoz.bounce.com.au/
A website inspired by the life of Daniel Sean Sheffield 7.7.07 – 9.7.07.
Dedicated to all those with trisomy 13 and similar disorders, whether they be long-term survivors or treasured memories.
And to any parent who has ever received a difficult prenatal diagnosis.
A website inspired by the life of Daniel Sean Sheffield 7.7.07 – 9.7.07.
Dedicated to all those with trisomy 13 and similar disorders, whether they be long-term survivors or treasured memories.
And to any parent who has ever received a difficult prenatal diagnosis.
For more, please visit http://www.etsy.com/shop/zealousbeading .